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We the Scientists : How a Daring Team of Parents and Doctors Forged a New...
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US $8,50
Około33,29 zł
Wysyłka:
Znajduje się w: Oneida, Tennessee, Stany Zjednoczone
Dostawa:
Szacowana między Pn, 20 maj a Śr, 22 maj do 43230
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Zwrot w ciągu 30 dni. Za wysyłkę zwrotną płaci kupujący. Zobacz szczegóły- aby uzyskać więcej informacji dotyczących zwrotów
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Nr przedmiotu eBay: 386603490261
Ostatnia aktualizacja: 11-01-2024 01:46:40 CET Wyświetl wszystkie poprawkiWyświetl wszystkie poprawki
Parametry przedmiotu
- Stan
- Series
- N/A
- Subject Area
- Treatment
- Educational Level
- Adult & Further Education
- Level
- Beginner
- Features
- Dust Jacket
- Country/Region of Manufacture
- United States
- Subject
- Medicine
- ISBN
- 9780399576133
- Publication Year
- 2023
- Type
- Textbook
- Format
- Hardcover
- Language
- English
- Publication Name
- We the Scientists : How a Daring Team of Parents and Doctors Forged a New Path for Medicine
- Item Height
- 1.1in
- Item Length
- 8.5in
- Publisher
- Penguin Publishing Group
- Item Width
- 5.8in
- Item Weight
- 12.7 Oz
- Number of Pages
- 256 Pages
O tym produkcie
Product Information
A Pulitzer Prize-winning reporter's moving narrative of a group of patient advocates who are revolutionizing the way medical research is conducted. For more than half a century, medical advances have been driven by investigators launching experiments inside labs. Science is often conducted in isolation and geared toward the long view. This is the story of a group of people who tried to force the lab doors open- parents whose children had been diagnosed with a rare and fatal genetic condition known as Niemann-Pick disease type C. The disease prevents cells from processing cholesterol, which leads to the progressive loss of the brain's and the body's ability to function. Recognizing that there would never be a treatment in time to save their children if things stayed the same, the parents set up a collaboration with researchers and doctors in search of a cure. Reconciling different views of science took work. The parents, doctors, and researchers didn't always agree-among themselves or with each other. But together they endeavored toaccelerate the development of new drugs. The parents became citizen scientists, identifying promising new treatments and helping devise experiments. They recorded dataaboutthe children and co-authored scientific papers sharing findings. They engaged directly with the FDA at each step of the drug approval process. Along the way, they advanced the radical idea that science must belong to us all. Amy Dockser Marcus shows what happens when a community joins forces with doctors and researchers to try to save children's lives. Their extraordinary social experiment reveals new pathways for treating disease and conducting research. Science may be forever changed.
Product Identifiers
Publisher
Penguin Publishing Group
ISBN-10
0399576134
ISBN-13
9780399576133
eBay Product ID (ePID)
12057238474
Product Key Features
Publication Name
We the Scientists : How a Daring Team of Parents and Doctors Forged a New Path for Medicine
Format
Hardcover
Language
English
Publication Year
2023
Type
Textbook
Number of Pages
256 Pages
Dimensions
Item Length
8.5in
Item Height
1.1in
Item Width
5.8in
Item Weight
12.7 Oz
Additional Product Features
Lc Classification Number
Rj399.L95m37 2023
Reviews
Praise for We the Scientists : "A deeply compassionate work of masterly reporting and storytelling, We the Scientists illuminates how science moves forward - and how much a dedicated group of advocates can accomplish. This is an important book that draws on both the heart and mind. It is the story of how discovery happens." --Charles Duhigg, bestselling author of The Power of Habit and Smarter Faster Better " We The Scientists offers an urgent, harrowing, and inspiring look at the beginning of a patient-led research movement in medicine. Amy Dockser Marcus has a sensitive, sophisticated eye for capturing not just the humanity of her subjects but also the ethical complexity of what they're undertaking. The stakes could not be higher, making this account as vital as it is necessary." --Robert Kolker, author of Hidden Valley Road, Praise for We the Scientists : "A deeply compassionate work of masterly reporting and storytelling, We the Scientists illuminates how science moves forward--and how much a dedicated group of advocates can accomplish. This is an important book that draws on both the heart and mind. It is the story of how discovery happens." --Charles Duhigg, bestselling author of The Power of Habit and Smarter Faster Better " We The Scientists offers an urgent, harrowing, and inspiring look at the beginning of a patient-led research movement in medicine. Amy Dockser Marcus has a sensitive, sophisticated eye for capturing not just the humanity of her subjects but also the ethical complexity of what they're undertaking. The stakes could not be higher, making this account as vital as it is necessary." --Robert Kolker, author of Hidden Valley Road "As Amy Dockser Marcus shows in her lucid and riveting book, collaboration between researchers and the parents of children suffering from a rare and fatal genetic disease was the key to making strides towards a cure. In the looming age of Long COVID, when patient groups rather than researchers first noticed and recorded lingering symptoms, Marcus's is a timely and important message." --Laura J. Snyder, author of The Philosophical Breakfast Club "Amy Dockser Marcus asks the big questions--how knowledge accumulates, whose life is worth living, the meaning of compassion--with a laser-like focus on one rare genetic disease. Heroes abound in this beautifully-written book in which scientists, professional and lay, work together to vanquish NPC." --Robin Marantz Henig, author of The Monk in the Garden and Pandora's Baby " We The Scientists is a deeply moving and intimate account of families confronting a rare and tragic disease--and also a bold proposal for a remaking of the compact between medical research and patients." --Nicholas Lemann, author of Promised Land and Transaction Man, Praise for We the Scientists : "[A] gripping and deeply humane tale." - People Magazine "The story of a painful but inspiring search for a cure for a fatal disease....A moving argument for a more focused, humane, and efficient system for conducting medical research." -- Kirkus (STARRED REVIEW) "A deeply compassionate work of masterly reporting and storytelling, We the Scientists illuminates how science moves forward--and how much a dedicated group of advocates can accomplish. This is an important book that draws on both the heart and mind. It is the story of how discovery happens." --Charles Duhigg, bestselling author of The Power of Habit and Smarter Faster Better " We The Scientists offers an urgent, harrowing, and inspiring look at the beginning of a patient-led research movement in medicine. Amy Dockser Marcus has a sensitive, sophisticated eye for capturing not just the humanity of her subjects but also the ethical complexity of what they're undertaking. The stakes could not be higher, making this account as vital as it is necessary." --Robert Kolker, author of Hidden Valley Road "As Amy Dockser Marcus shows in her lucid and riveting book, collaboration between researchers and the parents of children suffering from a rare and fatal genetic disease was the key to making strides towards a cure. In the looming age of Long COVID, when patient groups rather than researchers first noticed and recorded lingering symptoms, Marcus's is a timely and important message." --Laura J. Snyder, author of The Philosophical Breakfast Club "Amy Dockser Marcus asks the big questions--how knowledge accumulates, whose life is worth living, the meaning of compassion--with a laser-like focus on one rare genetic disease. Heroes abound in this beautifully-written book in which scientists, professional and lay, work together to vanquish NPC." --Robin Marantz Henig, author of The Monk in the Garden and Pandora's Baby " We The Scientists is a deeply moving and intimate account of families confronting a rare and tragic disease--and also a bold proposal for a remaking of the compact between medical research and patients." --Nicholas Lemann, author of Promised Land and Transaction Man, Praise for We the Scientists : "A deeply compassionate work of masterly reporting and storytelling, We the Scientists illuminates how science moves forward - and how much a dedicated group of advocates can accomplish. This is an important book that draws on both the heart and mind. It is the story of how discovery happens." --Charles Duhigg, bestselling author of The Power of Habit and Smarter Faster Better " We The Scientists offers an urgent, harrowing, and inspiring look at the beginning of a patient-led research movement in medicine. Amy Dockser Marcus has a sensitive, sophisticated eye for capturing not just the humanity of her subjects but also the ethical complexity of what they're undertaking. The stakes could not be higher, making this account as vital as it is necessary." --Robert Kolker, author of Hidden Valley Road "As Amy Dockser Marcus shows in her lucid and riveting book, collaboration between researchers and the parents of children suffering from a rare and fatal genetic disease was the key to making strides towards a cure. In the looming age of Long COVID, when patient groups rather than researchers first noticed and recorded lingering symptoms, Marcus's is a timely and important message." --Laura J. Snyder, author of The Philosophical Breakfast Club, Praise for We the Scientists : "A deeply compassionate work of masterly reporting and storytelling, We the Scientists illuminates how science moves forward - and how much a dedicated group of advocates can accomplish. This is an important book that draws on both the heart and mind. It is the story of how discovery happens." --Charles Duhigg, bestselling author of The Power of Habit and Smarter Faster Better
Topic
Pediatrics, Physician & Patient, Research, Disease & Health Issues
Lccn
2022-023324
Dewey Decimal
618.920042
Intended Audience
Trade
Dewey Edition
23
Genre
Medical, Social Science
Opis przedmiotu podany przez sprzedawcę
Sprzedawca ponosi pełną odpowiedzialność za wystawienie tej oferty sprzedaży.
Nr przedmiotu eBay: 386603490261
Ostatnia aktualizacja: 11-01-2024 01:46:40 CET Wyświetl wszystkie poprawkiWyświetl wszystkie poprawki
Wysyłka i obsługa
Lokalizacja przedmiotu:
Oneida, Tennessee, Stany Zjednoczone
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Afganistan, Albania, Algieria, Andora, Angola, Anguilla, Antigua i Barbuda, Arabia Saudyjska, Argentyna, Armenia, Aruba, Australia, Austria, Azerbejdżan, Bahamy, Bahrajn, Bangladesz, Belgia, Belize, Benin, Bermudy, Bhutan, Boliwia, Botswana, Bośnia i Hercegowina, Brazylia, Brunei, Burkina Faso, Burundi, Bułgaria, Chile, Chiny, Chorwacja, Cypr, Czad, Czarnogóra, Czechy, Dania, Demokratyczna Republika Konga, Dominikana, Dżibuti, Egipt, Ekwador, Erytrea, Estonia, Eswatini, Etiopia, Fidżi, Filipiny, Finlandia, Francja, Gabon, Gambia, Ghana, Gibraltar, Grecja, Grenada, Grenlandia, Gruzja, Gujana, Gwatemala, Gwinea, Gwinea Bissau, Gwinea Równikowa, Haiti, Hiszpania, Holandia, Honduras, Hongkong, Indie, Indonezja, Irlandia, Islandia, Izrael, Jamajka, Japonia, Jemen, Jordania, Kajmany, Kambodża, Kamerun, Kanada, Katar, Kazachstan, Kenia, Kirgistan, Kiribati, Kolumbia, Kongo, Korea Południowa, Kostaryka, Kuwejt, Laos, Lesotho, Liban, Liberia, Liechtenstein, Litwa, Luksemburg, Macedonia Północna, Madagaskar, Makau, Malawi, Malediwy, Malezja, Mali, Malta, Maroko, Mauretania, Mauritius, Meksyk, Monako, Mongolia, Montserrat, Mozambik, Mołdawia, Namibia, Nauru, Nepal, Niemcy, Niger, Nigeria, Nikaragua, Norwegia, Nowa Zelandia, Oman, Pakistan, Panama, Papua-Nowa Gwinea, Paragwaj, Peru, Polska, Portugalia, Południowa Afryka, Republika Zielonego Przylądka, Republika Środkowoafrykańska, Rumunia, Rwanda, Saint Kitts i Nevis, Saint Lucia, Saint Vincent i Grenadyny, Salwador, Samoa Zachodnie, San Marino, Senegal, Serbia, Seszele, Sierra Leone, Singapur, Sri Lanka, Stany Zjednoczone, Surinam, Szwajcaria, Szwecja, Słowacja, Słowenia, Tadżykistan, Tajlandia, Tajwan, Tanzania, Togo, Tonga, Trynidad i Tobago, Tunezja, Turcja, Turkmenistan, Turks i Caicos, Uganda, Urugwaj, Uzbekistan, Vanuatu, Wallis i Futuna, Watykan, Wielka Brytania, Wietnam, Wybrzeże Kości Słoniowej, Wyspy Salomona, Węgry, Włochy, Zambia, Zimbabwe, Zjednoczone Emiraty Arabskie, Łotwa
Wykluczenia:
Barbados, Gujana Francuska, Gwadelupa, Libia, Martynika, Nowa Kaledonia, Polinezja Francuska, Reunion, Rosja, Ukraina, Wenezuela
| Wysyłka i obsługa | Do | Usługa | Dostawa*Zobacz uwagi o dostawie |
|---|---|---|---|
| Bezpłatna wysyłka | Stany Zjednoczone | Wysyłka ekonomiczna (USPS Media MailTM) | Szacowana między Pn, 20 maj a Śr, 22 maj do 43230 |
| Czas na wysłanie |
|---|
| Zwykle wysyłam przesyłkę w ciągu 1 dnia roboczego po otrzymaniu rozliczonej płatności. |
| Podatki |
|---|
| Podczas realizacji transakcji mogą zostać naliczone podatki. Dowiedz się więcejDowiedz się więcej o płaceniu podatku za zakupy na eBay. |
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